THE KNOPF FAMILY: The plague...

Thursday, March 26, 2009

The plague...

has hit the house...
I have been sick as a dog all week.... Caroline has been down with it since Monday... she is really starting to worry me... all she wants to do is sleep... we're going to the Dr in the morning.

I need to get better and I am praying that nobody else catches this....

I leave next Friday... One week form tomorrow... with David... my son not DH.... to go visit my best friend in the whole wide world and her family... she has 2 kiddos with PWS.... we have been best friends since her older son with PWS and David were babies... we met at our first PWSA conference many many years ago and the rest is history!! We have been through adoptions, deaths, weddings, and everything in between.... I can't wait to see her and the rest of the family... and this is the first time that I will be taking David with me.... her son and David are kind of kindered spirits.. cut from the same mold.... they will have a blast too.

So... stay tuned.... I promise to update...
I just need to get over this crud that I have and be ready to roll next week!!!

~Vicki

1 comments:

J said...: Vicki - that sounds great! Did your friend also adopt?

We were hit hard this week too. All of us got either the stomach virus or "another strain" according to the pediatrician. Alden anf Garrett have had a fever and lethargic since Monday. It stinks.

Hope you all get better and have a great trip - I am jealous!

xo
Jeannette; April 2, 2009 at 11:40 AM

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Our Journey With Prader-Willi Syndrome

Our journey with Prader-Willi Syndrome started on December 1, 1994 when our son David was born.
David is our 4th child. We had no idea that our world was about to change forever, that nothing would ever be the same... or what that would even mean...
"Your baby has Prader-Willi Syndrome"
The words seemed to float around the room, like they weren't really meant for me to hear. This couldn't be possible because we already had 3 healthy boys. I had prooved 3 times over that I could make healthy babies! That's what it was... a mistake... they had made a terrible mistake... they were talking about somebody elses baby, not mine. I didn't hear what they were saying... these words weren't meant for me. I looked at my husband who was holding David and he had tears rolling down his face, but he was in control, he asked the questions, he was crying... I'd never seen him cry, not like this anyway. I was just sitting there like a silent observer to this scene. I didn't belong here, this wasn't my life. We were taking our baby home today and they were wrong. I would proove it to them. We walk back to the NICU with David to pack his things from his 10 day stay. His nurse gave me a hug and I collapsed to my knees on the NICU floor sobbing... It hit me like a ton of bricks.. I am the mother of a baby with special needs. Some syndrome called Prader-Willi... not sure how we are going to do this, we pack our baby and head for home.
The firt couple of years were a blur. David was sickly and we were in and out of the hospital with illness and surgeries. There was endless physical and occupational therapy, it took forever to feed him.. he had an NG tube for almost a year and was on oxygen until he was 3. Jacob was born 13 months after David and we were busier than we ever thought we could be. We had 5 little boys and life was good. But we both had this feeling that something, or someone was missing. Then we are told of a baby who has PWS and was in need of a family and we both knew immediately that this is what we wanted to do. So in September of 1999, Ben joined our family at the age of 5 months. He stole our hearts and life was good. We were busy raising 6 boys, everyone thought we were either saints or just plain crazy for adopting a child with PWS when we already had a child with it. Life was good, Life was busy, we wouldn't change a thing.... but something or someone was missing.
In May of 2001 I was put in contact with a family who had a baby girl with PWS. They were making an adoption plan for her and long story short, Caroline Grace Elise came to live with us when she was 7 weeks old. We all fell completely head over heals in love with this baby girl! She was the missing piece to our family. Life is good, life is busy.. Our family is complete.
7 kids, 3 with Prader-Willi Syndrome, maybe we are Saints, maybe we are crazy, maybe we're a little of both! Either way, life is good, and we wouldn't change a thing.

THE KNOPF FAMILY

Thursday, March 26, 2009

The plague...

1 comments:

Our Journey With Prader-Willi Syndrome

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