THE KNOPF FAMILY

Tuesday, February 17, 2009

Video from Sunday....

Enjoy...
You might want to go to the bottom of the page and turn off the music I have playing first... that way you can appropriately hear the screams as we hit the water!!!

Make video montages at www.OneTrueMedia.com

Sunday, February 15, 2009

2009 Penguin Plunge!!!

Before the plunge... we had some time to kill... so Dave thought it would be funny to play around with the bow tie...

Pictured in no particular order from the PLUNGE... the water was 36 degrees.. the air temp was about the same... Dave and I both went in up to out necks... it literally took our breath away.. you couldn't inhale it was so cold and as we headed back to shore it took everything we had to get our leg muscles to work correctly... FYI.... Jake went in not only once.. but TWICE!!!!

TEAM VIKING raised over $2,500.00 today!!!!

Our photographers/ babysitters for the day.... Aric and his girlfriend Kiersten.. this was taken back at our friends John and Lori's house... Lori had a HUGE pot of chowder and HOT grilled Rhuebin sandwiches ready for us when we got back to their house for lunch!!! Thanks Guys!!! Lunch was great!!!!!

A HUGE THANK YOU TO EVERYONE WHO SUPPORTED US AND SPECIAL OLYMPICS!!! WE WILL BE BIGGER AND BETTER NEXT YEAR!!!! A SPECIAL THANKS TO TEAM VIKING...

DAVE

VICKI

JAKE

ANTHONY

DOUG

JOHN

ALEX

KEVIN

JESSE

and everyone who came out today to support us!!!

you guys ~~R-O-C-K~~

stay tuned tomorrow for video clips... I'm too tired tonight to sort through them.

~Vicki

Saturday, February 14, 2009

Tomorrow is The Day!!!!!!!

Stay tuned for pictures and video tomorrow afternoon!

You guys all ROCK!!! Team VIKING has raised over $2500.00 for Special Olympics CT!!!

I am so pumped up!!! This is going to be a BLAST!!!!!!!

If you are in the area... tomorrow at Ocean Beach... 12:00pm.... come on down and cheer us on!!! We need all the cheering we can get!!!!

Thanks guys!!!!!
Vicki

Sunday, February 8, 2009

Shorty's Pub Shout Out!!!!

Thanks Melody, Tracy, Matt, Shawn, Brian and CREW for letting us hold a 50/50 raffle to benefit the Penguin Plunge next Sunday!! You guys are the BEST!!! We reaised a ton of money!!
Stay tuned for pictures next weekend!!!! Love you guys!!!!!!

~Vicki

Our Journey With Prader-Willi Syndrome

Our journey with Prader-Willi Syndrome started on December 1, 1994 when our son David was born.
David is our 4th child. We had no idea that our world was about to change forever, that nothing would ever be the same... or what that would even mean...
"Your baby has Prader-Willi Syndrome"
The words seemed to float around the room, like they weren't really meant for me to hear. This couldn't be possible because we already had 3 healthy boys. I had prooved 3 times over that I could make healthy babies! That's what it was... a mistake... they had made a terrible mistake... they were talking about somebody elses baby, not mine. I didn't hear what they were saying... these words weren't meant for me. I looked at my husband who was holding David and he had tears rolling down his face, but he was in control, he asked the questions, he was crying... I'd never seen him cry, not like this anyway. I was just sitting there like a silent observer to this scene. I didn't belong here, this wasn't my life. We were taking our baby home today and they were wrong. I would proove it to them. We walk back to the NICU with David to pack his things from his 10 day stay. His nurse gave me a hug and I collapsed to my knees on the NICU floor sobbing... It hit me like a ton of bricks.. I am the mother of a baby with special needs. Some syndrome called Prader-Willi... not sure how we are going to do this, we pack our baby and head for home.
The firt couple of years were a blur. David was sickly and we were in and out of the hospital with illness and surgeries. There was endless physical and occupational therapy, it took forever to feed him.. he had an NG tube for almost a year and was on oxygen until he was 3. Jacob was born 13 months after David and we were busier than we ever thought we could be. We had 5 little boys and life was good. But we both had this feeling that something, or someone was missing. Then we are told of a baby who has PWS and was in need of a family and we both knew immediately that this is what we wanted to do. So in September of 1999, Ben joined our family at the age of 5 months. He stole our hearts and life was good. We were busy raising 6 boys, everyone thought we were either saints or just plain crazy for adopting a child with PWS when we already had a child with it. Life was good, Life was busy, we wouldn't change a thing.... but something or someone was missing.
In May of 2001 I was put in contact with a family who had a baby girl with PWS. They were making an adoption plan for her and long story short, Caroline Grace Elise came to live with us when she was 7 weeks old. We all fell completely head over heals in love with this baby girl! She was the missing piece to our family. Life is good, life is busy.. Our family is complete.
7 kids, 3 with Prader-Willi Syndrome, maybe we are Saints, maybe we are crazy, maybe we're a little of both! Either way, life is good, and we wouldn't change a thing.

THE KNOPF FAMILY

Tuesday, February 17, 2009

Video from Sunday....

Sunday, February 15, 2009

2009 Penguin Plunge!!!

Saturday, February 14, 2009

Tomorrow is The Day!!!!!!!

Sunday, February 8, 2009

Shorty's Pub Shout Out!!!!

Our Journey With Prader-Willi Syndrome

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