THE KNOPF FAMILY: Memorial Day Weekend

Wednesday, May 30, 2007

Memorial Day Weekend

Hi Everyone~
Sorry it's been a while since I have had 2 seconds to post an entry.... life has been very, very busy lately!

We just got back from a weekend jaunt to visit Dave's family in NY State. It's always an adventure when we visit! We started the weekend with a visit to the ER in standard fashion... the Knopf boys can't keep from injuring themselves while we are there! Ben twisted his ankle and it swelled up huge... I was pretty sure it was broken, but luckily it was just sprained. He had it wrapped and was about as dramatic as he could be about it!

It was a fun weekend visiting everyone. We had family portraits done and as soon as I get one to scan, I will post it for all to see... it actually came out really good. We haven't had one done with Dave and I in it in a very long time.

Here are a couple of photo's of the kids with their Great Grandmother... they call her "Bea"
This is Ryan with Bea

This is David and Jake with Bea

This is the Jolly Green Giant AKA Alex with Bea... Alex is 6' 3" tall!

Here are a couple of pictures of the kids hanging out... they love to sit on the trampoline with their cousins and chat...

This is Ryan and his gierlfriend Kellie, She spent the weekend with us... they both graduate from High School in 3 weeks.... sigh....

Stay tuned in he next few weeks... there is a lot going on around here... the Senor Prom is Saturday night, Aric gradutates from 8th grade, Ryan graduates from High School on 6/22 and we go away on vacation on 7/1! There will be lots of updates and photos!

Enjoy the sunshine!!!!
~Vicki

1 comments:

Anonymous said...: Hello, I'm Mariona, from Prader-Willi Syndrom Association from Madrid (Spain).

Recently we discovered this blog. We've linked it from our blog (http://amspw.blogia.com), and we translated your presentation to Spanish and published it as an article in order to make know our readers about your family. We hope you don't mind.

I imagine time will tell if you are saints or crazy. What I'm sure is your 3 children with PWS will grow in an environment quite different of this of other children with PWS.

Thank you very much for telling yous story to the world. It may help a lot of people.

Best wishes and lots of patience,
Mariona Nadal
http://www.amspw.org; June 4, 2007 at 3:01 PM

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Our Journey With Prader-Willi Syndrome

Our journey with Prader-Willi Syndrome started on December 1, 1994 when our son David was born.
David is our 4th child. We had no idea that our world was about to change forever, that nothing would ever be the same... or what that would even mean...
"Your baby has Prader-Willi Syndrome"
The words seemed to float around the room, like they weren't really meant for me to hear. This couldn't be possible because we already had 3 healthy boys. I had prooved 3 times over that I could make healthy babies! That's what it was... a mistake... they had made a terrible mistake... they were talking about somebody elses baby, not mine. I didn't hear what they were saying... these words weren't meant for me. I looked at my husband who was holding David and he had tears rolling down his face, but he was in control, he asked the questions, he was crying... I'd never seen him cry, not like this anyway. I was just sitting there like a silent observer to this scene. I didn't belong here, this wasn't my life. We were taking our baby home today and they were wrong. I would proove it to them. We walk back to the NICU with David to pack his things from his 10 day stay. His nurse gave me a hug and I collapsed to my knees on the NICU floor sobbing... It hit me like a ton of bricks.. I am the mother of a baby with special needs. Some syndrome called Prader-Willi... not sure how we are going to do this, we pack our baby and head for home.
The firt couple of years were a blur. David was sickly and we were in and out of the hospital with illness and surgeries. There was endless physical and occupational therapy, it took forever to feed him.. he had an NG tube for almost a year and was on oxygen until he was 3. Jacob was born 13 months after David and we were busier than we ever thought we could be. We had 5 little boys and life was good. But we both had this feeling that something, or someone was missing. Then we are told of a baby who has PWS and was in need of a family and we both knew immediately that this is what we wanted to do. So in September of 1999, Ben joined our family at the age of 5 months. He stole our hearts and life was good. We were busy raising 6 boys, everyone thought we were either saints or just plain crazy for adopting a child with PWS when we already had a child with it. Life was good, Life was busy, we wouldn't change a thing.... but something or someone was missing.
In May of 2001 I was put in contact with a family who had a baby girl with PWS. They were making an adoption plan for her and long story short, Caroline Grace Elise came to live with us when she was 7 weeks old. We all fell completely head over heals in love with this baby girl! She was the missing piece to our family. Life is good, life is busy.. Our family is complete.
7 kids, 3 with Prader-Willi Syndrome, maybe we are Saints, maybe we are crazy, maybe we're a little of both! Either way, life is good, and we wouldn't change a thing.

THE KNOPF FAMILY

Wednesday, May 30, 2007

Memorial Day Weekend

1 comments:

Our Journey With Prader-Willi Syndrome

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