THE KNOPF FAMILY: EEEEEKKKKKKK!!!!!!

Thursday, December 18, 2008

EEEEEKKKKKKK!!!!!!

Christmas is in ONE WEEK!!!

I have SO MUCH shopping left to do it isn't even funny. Seriously... not funny.

The weather forecast is talking snow storm tomorrow... more snow for the weekend... more snow for Monday!!!!

Where are all of you with your shopping??

Good Luck!

V

2 comments:

Country Mouse, City Mouse said...: I live in Canada, my sister lives in the US. I did a lot of my shopping online and had it delivered to her house. My husband has gone to pick it up. This is the second year in a row that I did this, and it is GREAT!

Good luck, and merry christmas to your dear family.

Pam; December 19, 2008 at 7:48 PM
Angie Seaman said...: Oh my wholly heavens girl...17 inches of snow??? I think I would die. Really. Ha ha! I'm getting some sunshine for you here in south Florida right now. I'll bottle it up and send it your way ASAP. HEE HEE! Do you feel it comin'? Stay warm until then. Merry Christmas to you and your crew also. Hope it is the best one ever.
Big hugs, Angie

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www.angieseamanphotography.com; December 22, 2008 at 12:04 PM

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Our Journey With Prader-Willi Syndrome

Our journey with Prader-Willi Syndrome started on December 1, 1994 when our son David was born.
David is our 4th child. We had no idea that our world was about to change forever, that nothing would ever be the same... or what that would even mean...
"Your baby has Prader-Willi Syndrome"
The words seemed to float around the room, like they weren't really meant for me to hear. This couldn't be possible because we already had 3 healthy boys. I had prooved 3 times over that I could make healthy babies! That's what it was... a mistake... they had made a terrible mistake... they were talking about somebody elses baby, not mine. I didn't hear what they were saying... these words weren't meant for me. I looked at my husband who was holding David and he had tears rolling down his face, but he was in control, he asked the questions, he was crying... I'd never seen him cry, not like this anyway. I was just sitting there like a silent observer to this scene. I didn't belong here, this wasn't my life. We were taking our baby home today and they were wrong. I would proove it to them. We walk back to the NICU with David to pack his things from his 10 day stay. His nurse gave me a hug and I collapsed to my knees on the NICU floor sobbing... It hit me like a ton of bricks.. I am the mother of a baby with special needs. Some syndrome called Prader-Willi... not sure how we are going to do this, we pack our baby and head for home.
The firt couple of years were a blur. David was sickly and we were in and out of the hospital with illness and surgeries. There was endless physical and occupational therapy, it took forever to feed him.. he had an NG tube for almost a year and was on oxygen until he was 3. Jacob was born 13 months after David and we were busier than we ever thought we could be. We had 5 little boys and life was good. But we both had this feeling that something, or someone was missing. Then we are told of a baby who has PWS and was in need of a family and we both knew immediately that this is what we wanted to do. So in September of 1999, Ben joined our family at the age of 5 months. He stole our hearts and life was good. We were busy raising 6 boys, everyone thought we were either saints or just plain crazy for adopting a child with PWS when we already had a child with it. Life was good, Life was busy, we wouldn't change a thing.... but something or someone was missing.
In May of 2001 I was put in contact with a family who had a baby girl with PWS. They were making an adoption plan for her and long story short, Caroline Grace Elise came to live with us when she was 7 weeks old. We all fell completely head over heals in love with this baby girl! She was the missing piece to our family. Life is good, life is busy.. Our family is complete.
7 kids, 3 with Prader-Willi Syndrome, maybe we are Saints, maybe we are crazy, maybe we're a little of both! Either way, life is good, and we wouldn't change a thing.

THE KNOPF FAMILY

Thursday, December 18, 2008

EEEEEKKKKKKK!!!!!!

2 comments:

Our Journey With Prader-Willi Syndrome

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